Saturday, April 15, 2006

MISALIGNED MERIDIANS

Needlework
The trip to the acupuncturist/chiropractor was fascinating. She started out by checking my range of motion in my arms and my neck & back (they're fine, said I)... during which she pretty much started laughing at me. Apparently, I really don't have good range of motion in my left arm (from the surgery) and she touched this spot on my neck ("does this hurt?") and practically dropped me to my knees in pain. Who knew.
Then she tested my meridians, which has to do with the 7 (8?) acupuncture pulses but involves electronics and sounds like a metal detector. My left and right energies are misaligned. "Are most people uneven?" I asked her. "No." she responded. (...dammit). She did some pressure point stuff then took me into a back room to do the actual acupuncture. Some in my feet, legs, hands, arms, and (get this) ears. Some of them stung more than others going in (depends on the energy at the point, she told me) but really not bad at all (less than a shot-- especially the "this will hurt" ones I've been getting lately). Then, right before she left she told me "the needles will hurt if you move." (whaaa?) ...after which my nose started to itch furiously. I lay there for about 20 minutes in the dark and quiet that was it. Much more pleasant than say, an MRI. I definitely felt better afterwards, but I'm unclear if that's due to the acupuncture treatment or the fact that I was one more day away from chemo treatment. We'll see for sure next week. But in any event it was very interesting and I can only describe what I felt at the whole process as amazement that people know this stuff and wonder at what else is yet to be discovered about how this whole mind-body-spirit thing all works. Complimentary medicine indeed. I'm glad I went.

In the News
Breast cancer has the huge advantage that it is researched so extensively that the infamous "they" have discovered that not all tumors are alike. For example, I have what's called a hormone-receptor negative tumor which means that post-chemo drugs like tamoxifin won't work for me (although they really help the 2/3s of women who have estrogen receptor-positive tumors). ER negative folks typically have more aggressive tumors and it was also thought that they (we) have a worse prognosis. However, you may have heard the good news on NPR this past week:
Chemo Succeeds Against Hard-To-Treat Cancer
Study Focuses on Tumors Not Fueled by Estrogen
CHICAGO (April 11) - Research offers hopeful news to women whose breast cancers are typically more difficult to treat: Modern chemotherapy means more of them will survive than previously thought

Basically, exactly the chemo treatment I'm getting (dose dense) has been shown to reduce the risk of recurrence as much as 50%. Rock on. That makes it a little more palatable to feel ick.

Dodging Bullets
When I was in Navy ROTC one of my summer training stints involved a week in the Marines. (I know, it seemed surreal to me as well). The hardest day involved climbing up ropes with full gear on (during which I made it about 2/3rds of the way up and then fell flat on my back), storming a mock town, and low crawling under barbed wired while gunnery sergeants screamed at us ("Stay down maggots!") and shot (hopefully well over) our heads. I remember thinking after I fell into bed exhausted and bruised from the 22 hour day that if I had known ahead of time what I was in for I didn't think I would've been able to get out of bed that morning. Hmmm. (Good thing I have a 3-year old anti-snooze alarm).

Happy thought alert #4: 10:15 MST.

19 Comments:

At April 17, 2006 1:10 AM, Blogger bmacpiper said...

Ha, for once I have caught you in the act of the Late Sunday Night Post. I have always wondered how on earth you have managed to post after I go to bed (Pacific Time to boot)!

Excellent to hear the ubiquitous They have struck again. They seem to do that. Did you know that humankind has learned more in the last hundred years than in all the millenia that went before? I guess that isn't that surprising when you think about it, but it does seem kind of cool to live in this time. Imagine what it will be like in a hundred years. I have said for years now that someday we will look at chemo the same way that we look at ancient "brain surgery", where the unanesthetized patient had holes drilled in their head to let out evil spirits. I know that probably makes you feel good to have your current treatment compared to that; you can smack me hard for it in two weeks. But it goes directly to what you said about all the things we don't know yet. I often wonder.

I just finished a tome on my blog about the rebuild of the front end on my old BMW motorcycle. So the next time you have insomnia, I have the cure... :)

Keep kicking ass.
bmc :)

 
At April 17, 2006 10:08 AM, Anonymous Anonymous said...

I just pushed the "send" button on a whole bunch of good vibrations, going your way.
Cheers,
Sophie

 
At April 17, 2006 10:12 AM, Anonymous Anonymous said...

Hi Cari

I know today marks another treatment for you. I spoke with Carol on her way down to hang out with you. Books on tape are a little easier to do than actual reading. I really got off on some preteen and young adult literature. Ramona, Nancy Drew that kind of stuff. It is kind of fun to revisit books we read when we were younger. Also, coloring and painting are really soothing and Xander would probably be great company with this.

Acupuncture is such a great thing to try. It will really open up your meridians. There is something good about increasing your energy flow
inside, when your chi is unstuck you will feel better. It is similar to a room in your home. You have a room arranged one way for years. One day you rearrange everything, vacuum, dust out all those little dust bunnies, etc. You can instantly feel the difference in the room. That is chi or energy that has been released. It is a wonderful feeling but a little hard to describe. I would imagine this is what you will experience in acpuncture. It will be subtle lots of times but it will be good none the less.

Am thinking of you today. Will check your schedule or tlak with Carol to find a time to come hang out with you. Hang in there sweetie!

Colleen

 
At April 17, 2006 11:56 AM, Anonymous Anonymous said...

Here's to learning about alternative treatments and thinking...the world and everything we have yet to learn never ceases to amaze me. You also never cease to amaze me. As for treatment #4...your glass has now been filled half way up. Each treatment is one step closer to being done...so keep on going!! YOU CAN DO IT!!! My thoughts are with you!

 
At April 17, 2006 12:46 PM, Anonymous Anonymous said...

Hi Cari!

My name is Heather, and I work, somewhat indirectly, with Lisa :) I just wanted you to know that I think about you every day, and hope that you kick this cancer's ass!!!

After reading your Saturday blog, I wanted to offer up the name of a woman who does Shiatsu massage (she's also a reiki master - so she's very well trained...). In my Shiatsu naivete, I can tell you that this practice coincides, if not compliments acupuntcture, and aligns your energy meridians through touch. I would highly recommend her! Her name is Christian Goldberg - ph 303.514.1445 / email polestarshiatsu@yahoo.com

Hang in there this week - we're cheering for you!!

Heather :)

 
At April 17, 2006 1:30 PM, Anonymous Anonymous said...

Hi Cari -

I'm new at the "blogging". I tried to post another message but it kicked me out. Forgive me if I end up posting the same message twice!!

Thanks for all the incredible writing on your website. Have you ever considered writing a book? Your writing is great!

Your positive attitude towards your situation continues to amaze and inspire us. Please know that we think of you often and are sending loads of energy your way.

xxoo
Dan and soon to be Amy Hurley :)

 
At April 17, 2006 2:37 PM, Anonymous Anonymous said...

Hi Cuz, I just returned from a toast masters meeting. I joined about a month or so ago. I figure that now is as good of a time as any to overcome this terror of public speaking thing. I remember hearing a bit about your toast masters experience. When I come visit next, I'll be sure to ask you all about it. I hope that today is going as well as possible. Oregon is sending you lots of love. :) A

 
At April 17, 2006 3:03 PM, Anonymous Anonymous said...

Hey Cari,

Okay, now I have to admit that I'm still bitter about Florida beating UCLA in the NCAA finals earlier this month. But I do realize that the Nobel ties to the Gator Nation are strong, so I'll have to get over it soon.

Alison, Jacob and I are thinking about you ... we have no doubt that your mom has passed on enough of her relentless competitive spirit in you to push through this physically taxing week. And remember that when the week is over, you're even entitled to gloat the way your mom does after a victory.

We visited JMU last weekend (for an alumni water polo tournament in which I played) ... I showed Alison the athletic facilities, passing by the racquetball courts ... I was then reminded of playing your dad there once, running all over the court, watching him not even break a sweat, and listening to Lisa laughing from the viewer's balcony above.

Please know that we're with you, now and always.

Love,
Mike Wissot

 
At April 17, 2006 6:16 PM, Anonymous Anonymous said...

hey there ceautiful,

I have not posted in a long time and thought this a good time to do so and I realize this belongs on the previous blog but here goes my assignment for last week. Things to entertain yourself:

1. coloring and cloud watching
are already covered;

2. JIGSAW PUZZLES; (I have plenty if you'd like to do one)

3. see how many times you can sing (Sing a song, sing a happy song, who is here? __________ is here in five minutes and retest to see if the original results were correct and then keep going to find the norm (sounds right up the math alley to me) and just think of the benefits of brain development for Liam (clapping=making both sides of the brain work in unison, and the language benefits of the singing);

4. See if you can remember the signs to A You're Adorable and not just the alphabet;

5. Learn a new sign every day and see how many ways you can think
to use it in a day, and/or

6. Count the people who are sending wonderful thoughts your way. I am sure that will keep you busy all week and then some.

Loving and thinking of all of you,

Lorri

 
At April 17, 2006 8:21 PM, Anonymous Anonymous said...

Hey there Cari. Just wanted you to know I am thinking of you, hoping that this week, and this 4th treatment, will soon be a distant speck in your rearview mirror.

In the meantime, I have one meager suggestion for mindless entertainment... Word Search! I made one especially for you of your (undoubtedly) favorite 80's musical superstars. Go to
http://www.cooperis.com/quizzes/wordsearch/060417the_80srebe.htm print and search. Then spend the next several hours trying to get those terrible songs out of your head! I hope you'll enjoy it, and will need another one soon because the next one will be even better. (Can you imagine?) Think: roadtrip to Seattle highlights, circa 1996.

Lots of love to you from Virginia,
Becky

 
At April 17, 2006 8:46 PM, Anonymous Anonymous said...

Cari,

You are in our thoughts often. You are so strong and you have such a great support system. We know you can beat this. Please know so many people are sending positive thoughts your way.

Love,

Marci, Paul, Jack and Max (Lisa's friend since the 3rd grade :)

 
At April 17, 2006 10:08 PM, Blogger Pam said...

Hi Cari!

Half way done. That's awesome! I was thinking of you today. That's really nothing new though. I think of you all the time. Today I was hoping you had a good distraction and I was wondering what it was!

Branching out, huh? That's very cool. The acupuncture sounds interesting!

So I have a suggestion for something to do (from an earlier post). Look through your pictures. And if you get inspired, change the pictures you have in your frames. Ok. That can be a lot of work. But you can just start with one or two.

Hang in there.
Love ya lots.
-Pam

 
At April 17, 2006 10:38 PM, Anonymous Anonymous said...

Hey Cari,

Heard today was treatment #4. Just want you to know that I'm dedicating each of my three yoga practices to you this week. I hope that each practice gives you more strength, more peace, and more relief.

After getting a taste of your experience through a repeat mammogram, two ultrasounds and a needle aspiration, I have even more of an appreciation for your tenacity throughout your journey. Luckily, I left the mammography center with a clean bill of health and don't have to return until I'm 38. But I went through a week of wondering and about 20-30 minutes of thinking for certain that I was destined to be following in your footsteps. It was one of the most frightening things I've ever been through but knowing you have been blazing the trail gave me a great deal of comfort!

So as weak and awful as the treatments make you feel, remember that you are an inspiration, a tower of strength, and a jumble of positive energy to the rest of us ... and each of us are sending that inspiration, strength, and positive energy right back at you!

Namaste (the spirit in me honors the spirit in you),

Steph (a friend of Lisa and Jarod's)

 
At April 18, 2006 5:25 AM, Anonymous Anonymous said...

Hi Carolyn, We met Jared and Lisa on honeymoon in Italy. We had both just got married in Italy and both owned an Akita so we had a few things to discuss! Teco looks very much like your mate Santo.

We found out about your "local difficulty" through you sisters amazing PR machine. You are really blessed to have a sister like her as she has certainly pulled out all the stops for you. If it were down to her determination alone, you would be fine.

We have followed your fight via your blog and and e.mails from Lisa and Jared and you are an inspiration to us. We know you have a tough bout of Chemo coming up and we hope that this "bad medicine" brings good things. Stay tough and give the big C hell!

We have not met, but we hope you will draw some comfort that you have friends in the United Kingdom, that you just have not met yet!

Love and Best Wishes,
Chris, Joanne and Teco

crayner1@mmm.com

 
At April 18, 2006 10:23 AM, Anonymous Anonymous said...

Carolyn -

Hope you are doing well today after the successful completion of treatment #4. I am sending you extra happy thoughts so that you continue on your road to recovery (which includes a victory dance, victory lap, and gold star just like my second grade teacher used to put on my homework...). We will dance like the cartoon characters from "Peanuts" very soon and celebrate. In the interim, relax if you can and let the chemo do the work.

RBW Fan Club President - Pasadena

 
At April 18, 2006 10:52 AM, Anonymous Anonymous said...

May love and strength be with you. And when that just ain't enough, there's always brownies!!!

-jarod

 
At April 18, 2006 1:43 PM, Anonymous Anonymous said...

If the light at the end of the tunnel is a train...that's great....forget belly crawling under...catch a ride out :-)

 
At April 21, 2006 5:53 AM, Blogger Pam said...

Bravahhhh!! Maybe while we're in Austin we should sing...

 
At August 17, 2006 4:20 PM, Anonymous Anonymous said...

Hey what a great site keep up the work its excellent.
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