8 LITTLE MONKEYS...
jumping on a bed. One fell off and broke his head. Doctor came over and he said- NO MORE MONKEYS JUMPING ON THE BED!
One down!
It wasn't too bad. Likely due to all of the well-timed support... I can't tell you how much all of your comments/well wishes/happy thoughts, etc. mean to me. Thanks so much!
The port, although good to have, makes me feel a bit like one of the BORG on star treck. I have a tube that runs from up under my collar bone into my jugular vein then down into my heart (?). In any event, I feel/look kinda freaky-scifish. But better then getting IVs all the time.
The actual chemo session wasn't bad at all. I just sat in a chair and hung out with jim. (Jim pointed out I was about 1/3 the age of most people in there) They "pushed" this huge (red) vial of Adriamycin into my port over about 5 minutes. Then they dripped in the Cytoxan over about an hour... along with a bunch of anti-nausea drugs. (As the nurse pointed out, they gave me "everything they've got" for anti-nausea.) Didn't hurt, no immediate effects-- I was just tired from the port surgery in the morning.
It's strange to sit around and wait to see how your body's going to react. It's all so unknown. The good news is that almost all of the symptoms are treatable... better yet, I didn't seem to have that bad of a reaction to anything. Just kinda like a minor hangover-- not bad.
Yesterday, however, was bad in that it overstretched my physical capability and great in that it proved what a tremendous support network we have. I went to work in the morning, during which I felt fine and enjoyed getting lots of compliments on my "new do". In the afternoon I took Liam to the dr. because he's been out of sorts and seemed like he had an ear infection. Sure enough, he does, but they had trouble getting a good pulse ox while he was at the doctor and ended up having him sent to the emergency room in an ambulance. Poor little guy!
As has happened several times in the past, as soon as he got to the hospital, he perked up and seemed fine. Luckily, my mom met me there, as I was pretty well spent because I didn't get a chance to eat and it's still really hard for me to hold liam with port so new and all.
In any event, we ended up just leaving the hospital after several hours of not being seen by a doctor and liam being ok (and me going downhill). Lisa and Tracey picked up my car from the place so it wouln't get towed (I went in the ambulance), Dad picked up the prescriptions, our neighbor brought over dinner, Annie went to pick up jim's mom at the airport, since we couldn't go out, and our pediatrician actually made a house call to make sure that Liam was ok (which he pretty much is). My mom is watching liam today.
So, as for me, as a result of yesterday's exploits, I'm exhausted. What I would do without everyone I have no idea. Luckily I don't have to worry about that.
16 Comments:
Carolyn,
I hope you get lots of rest today...I am thinking of you.
Christine
Carolyn -
I was going through "blog withdrawal" and thankfully you gave your awaiting audience an update. As expected, RBW made it through with flying colors despite all obstacles. You are such an inspiration. Yesterday at work, the proposal team went to lunch as we waited for comments on the proposal. We got on the subject of traffic violations - it is interesting the stories people have about getting out of tickets. If you ever need a good laugh, just ask a random group of people about this topic, and you should be rolling with laughter. One woman actually made her brother punch her in the nose so that she could explain to the trooper the reason why she was going 90 was to get to the hospital for her nose bleed...the stories just got funnier from there. I'm going to have to schedule more time in my day to read your blog and the comments as the amount of reading just keeps growing. Lisa's friends seem to be an oustanding bunch (what is in the Nobel gene pool that makes you guys so special??).
Have a great day.
RBW Fan Club President
Phheeeeeeeeeewwwwwwwwwwwwwwww.......
(That was a long exhale after holding my breath for the past three days)
I've been thinking of you non-stop and am not kidding when I say I've refreshed your blog page at least a hundred times since Monday morning.
I am sooooo glad to hear that the first round is in the books and with a good outcome so far, i.e. you still sound chipper and on top of the beast. Hopefully it will be easier from here, with gathering momentum and less fear.
Too bad Liam isn't old enough to really appreciate the lights and siren!!! He must have seemed awfully small on that big gurney! I'm always amazed at the skill and focus of the medics--I bet they took great care of the little guy.
Take good care and talk to you soon.
Clan McCafferty
Pacific Northwest Chapter
Cari,
You omitted something from "8 Little Monkeys" -- the fact that you're at your office and plan to be there most of the day (as incredible as that may seem).
I'm asking your blogging friends to join me in the plea I've already expressed to you -- PLEASE try to get more rest! And Jim, too!
Now that Carol and Larry are back, your extensive support team has been greatly enhanced. Please use us...early and often.
Even superheroes have to slow down sometimes.
Love, Dad
Interesting tactic Dad...when all else fails resort to peer pressure! Unfortunately Cari, he's right. Take a breath...relax...and let people help you. That's why we're here...and in all honesty, know ing there is something tangible we can do to help, makes us feel better. So, in reality, you're just placating our needs :-)
Glad to hear Whamo is doing better! There is lots of squirming to be done!!!
Hey Supafly,
OK, at your dad's beckoning, I'd better translate Normal Person Speak into Engineer Geek Speak. We'll call this one: Ben's Theory of the Sum of Unfavorable Tolerances (this really exists in the automotive world).
My old BMW motorcycle (which is two years younger than me, darnit) has its engine mounted laterally, up front. Engine has a splined output shaft to the clutch, which then goes to the transmission input shaft. Input to the transmission goes to a gear, which turns the tranny output shaft, which is splined to the driveshaft. The driveshaft has a universal joint, then continues back to a ring and pinion gear in the final drive. That has a splined connection to the rear wheel. All told, there are eight connections (coincidence? hmm? hmmmm?) that experience wear from end to end.
As each connection wears, it starts to go out of tolerances for that particular part. There is also an acceptable level of wear through the entire driveline, which cannot be exceeded. If any one of those connections fails, the whole thing fails. If, however, one connection is worn a little too much, but the others are ok, the bike can still be ridden (for a while). We'll call that Cheating The Sum. When each of the eight connections is worn out of specs, the "Sum of Unfavorable Tolerances" causes too much play in the entire driveline, and the thing can't be ridden anymore.
You've got eight connections of your own. As you add up the wear of each connection, the Sum starts approaching the magic number. If you keep wear to a minimum when you can (while you're strongest, i.e. NOW), you will be able to cheat the Sum later on when you most need it. Bank your energy. Save the bad wear for later, in case you need it. Your co-workers gave you all that time to help you knock this thing down--don't return that gift unopened.
And inside all of this, I know that you have to feel like a Normal Person sometimes, and don't want to be told what to do, and there's the rub...sorry for my contribution to that...
You know we all stand behind you, cheering you on in the ways we can, hoping to help out.
love,
bmc :)
Hey Currie-
I just wanted to drop you a line and let you know my thoughts are with you!!
Steven spawn of Collen and Peter... ;)
Just a note to say thinking of you and glad you got thru the port being put in and your treatment. Sounds like you have such a wonderful support group of people that care and love you; that's so important and you are truly blessed. You are in my special thoughts and prayers.....AJ
Just wanted to say hello and good luck the next several days. The first week is the worst, but you will start to feel better as the week goes on. Take advantage of that time!
Let me know if you need anything!
Dana
Well now, who am I to argue with Dad? Seriously, you are doing great and if you are feeling up to everything, go for it! Believe me, your body will let you know when to say when. But, if I could side with your Dad just a little, I would say that just know you have a finite amount of energy now. Use that energy for what is most important. It's really easy to figure out.
I hope it doesn't catch up with you too badly this next day or so. Hang in there! You are doing great!
hi, there. just sending well wishes. that adriamycin is a b*tch! i hope you're fairing better than i did. blessings - angie
Hi Carolyn -
Please give an extra squeeze to Liam for me - the poor little guy! Thanks to the amazing Nobel family and everyone pitching in - I rest easier at night knowing you are all there to help Carolyn and Jim out. And Cari - please know that our thoughts and prayers are with you (Jonathan doesn't really pray - he just "is," since he is a Taoist - but I'm sure they have some sort of equivalent that sends you lots of positive cosmic thoughts. Come to think of it, I don't think I've prayed this much ever in my life. Maybe I was just saving up for the right time to REALLY get started - and you are it!).
We're rooting for you!
Karlynn and Jonathan
Hola chica!
I was so surprised when i got onto my computer yesterday to check into my flight and see one of my favorite's "Cari(Online)". I knew, immediately, that there was strength enough that you hit the computer and I wanted to get the full skinny without harassing you too much...I didn't realize that it was actually from work until today. I wish I was in Denver still so I could stop by every 30 minutes and tell you to take a break :)
-Another Pasadena-ean missing the Coloradoan opportunities to harrass...
Carolyn,
I feel like I know you as I am going through your same situation. I've read your entire blog and thought I'd share mine if you're interested.
www.fkonick.blogspot.com
Stay strong...it won't be long and this journey will be over and you'll get your life back. I'm not there yet either, but I can see the light at the end of the tunnel.
Sincerely,
Fran
I loved my port. There's nothing like being part robot (ha!)
Good luck with everything. I just recently came across your site (over at the lovely Jeannette's) and I am enjoying your writing. Take care.
This site is one of the best I have ever seen, wish I had one like this.
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