HAPPIEST BABY ON THE BLOCK
I am thrilled to say that the hospital visit yesterday went as well as we could've hoped. They did all of the tests on Liam and determined that his lungs look great and that his heart pressure is lower than they thought, so his pulmonary hypertension can be classified as "mild". He is starting medicine and can begin to wean off O2 when he's awake. He will likely be on O2 at least at night through next winter and will be on the 3x day meds for a few years, but similar to asthma, they are optimistic that he will fully outgrow this in a year or two. Yeah!
The dreaded hospital visit had it moments-- particularly the part where we had to keep him lying flat/still for 4 hours after his procedures (he's is freakishly strong and wiggly) but all the doctors were great and we were home in the afternoon instead of spending the night, as we had anticipated. Surprisingly, the medicine he will be on is Viagra. I honestly thought they were kidding, but no. It's called something else (you'd hate to give a 1-year old a bad reputation) but that's what he'll be taking-- it's a "dilator" they tell me. Who knew. I'm just glad we're done with this step and have a plan forward.
Jim and I had a kid-free stay up in the mountains last weekend, thanks to Mop, T, and Annie. We also got to go on a hot air balloon ride, thanks to the Diana Price-Fish Foundation-- kind of a "make a wish" foundation for adults, with the goal of "helping adult cancer patients enjoy life." Well, it worked. We got to go 2000 feet up and see the Fraser valley from an entirely new perspective (talk about getting above it all) and down low enough to pick a pinecone from the top of a tree. I was tickled when the pilot blew bubbles over the side. Very cool.
A week from tomorrow is BBG (boobs-be-gone) day. I had both my pre-ops (masectomy & reconstruction) this past week, and for a change, didn't have any unpleasant surprises. They did take pictures though... although this time it was the dr. with a little digital instead of a blue photo room with lights and X-marks-the-spot (proving that I chose the right dr.). "I'm sorry we have to do this," the doctor said, "but later on you will like to see how far you've come."
Indeed.
36 Comments:
Carolyn -
Another wonderful message - glad to hear that Liam is doing so well. I bet you will never look at a pinecone the same way. You village is hard at work. We are gathering momentum for the Race for the Cure in Denver (October 8). I hope you would like to walk/run with us since you are the guest of honor.
Sending you HAPPY THOUGHTS...
RBW Fan Club President - Pasadena
WOOOOO-HOOOOOOOO
YIPEEEEE SKIPPPEEEEEEE
Thanks for sharing the ballooning pics - onward and upward from here on out!!!!!!!!
Good Luck from a friend of your sister! (fellow Gator)
Hey stud,
Great news. Viagra at 1...he should have it sacked for the rest of his life. The next Dirk Diggler? :)
Isn't technology grand? Hard to believe they can selectively open certain arteries, just with a pill. Madness. Not to mention making boobs out of butts and bellies.
Lots more energy flying your way from around the world, gathering on you again for next week. Don't forget to use us all if you need us. Remember the power of X! :)
love,
bmc :)
Viagra for infants? well, there are adult diapers, so perhaps there's some sort of logic there...
anyway, glad Liam's doing well, and the balloon ride sounds awesome.
As to surgery, just make sure to have your funnier friends visit you post-op. I did, and I had a great time (if being post-op is ever great?, uh ok, I had a better time than I thought I would...!) You'll be more than fine...sending good energy your way as per bmacpiper...
How fantastic - what a great week for all of you! So, so SO glad that Liam is doing so well. It just goes to show the power of "LA!" And he gets to go on Viagra, huh? (struggle) too many funny thoughts in mind....must hold it together...must contain myself at work!
And what a great balloon ride. That was certainly the all-time highlight when we were in New Zealand - it is one of the most peaceful times I've ever enjoyed. My wish for you is that you bring that peacefulness into surgery with you. I believe that visions of the mountains and your colorful balloon will bring you through with flying colors. And just think - neither a tiger nor an ox could deal with the balloon ride as well as you (and that's saying something!).
Sending lots of pre-op positive juju your way,
Kar
Hi Kari, Yeah for Liam! And also for your wonderful weekend. I keep you in my thoughts; and, know that I'll be thinking about you particularly next Friday. Please say hello to Gary Snider for me (isn't he gorgeous?) and keep us all posted with your wonderful, informative and entertaining blogs! Hugs, Jewell
Carolyn - Despite the difficult road you have traveled, you really are getting what many women want (and pay large sums of money for here in LA)- bigger boobs, smaller butt, flatter tummy...
Have a great weekend........
So happy to read Liam's tests went well.
Hang in there.
RBW Fan Club -San Antonio chapter
I am so glad that Liam is on the road to recovery. Viagra!?!!? You will definately be able to have some fun with this one once he gets old enough to understand how funny it is!
The balloon ride must have been amazing! Thanks for sharing the pictures.
Missing you and sending well wishes your way!!!
--kara
Congratulations. I'm glad to hear that you are doing well, your son is doing well, and that you ready for the next step. Your "noobies" will be fabulous! I'll be keeping you in my prayers for a speedy recovery. :)
Hi!
Good good good! Love the pics. I'll be thinking of you on Friday.
I keep thinking about the naked baby pictures that always embarrass teens. Liam has that beat.
Later!
Pam
You have a beautiful life and beautiful outlook on that life. I love to come here and read your thoughts and day to day adventures. So glad to see things are going well and you have such a great team pulling for you.
Viagra, huh? There are all sorts of Jim jokes I can think of now, but why ruin the fun for you? ;)
I told you Liam would be fine, but I guess it's good to hear it from a professional.
Good luck during your next little procedure.
phil
So once Liam looses his O2, you get your hair back and your boobs/belly taken care of, how does your mom plan to get out of speeding tickets? Maybe she could offer the officer some of Liam's Viagra?? Somehow I don't think we need to worry about your mom...
So glad to hear your happy news and the happy tone in your 'voice'. You are always in our thoughts and prayers.
Big hugs and kisses,
Meghan and Team Sobo
Hi Cuz, I'll be thinking of you tomorrow. Let me know if there is anything special that I can do to help you recover from surgery.
Love Amanda
Thinking about you and your family tomorrow and in the days of recovery ahead. Keep up your spirit, lean on your village and anything will be possible!
Big hugs,
Karlynn
Hi Cari,
Matt and I have been following your progress through Tracey. I am constantly amazed by your courage and strength. We will be thinking of you, as always, but especially through tomorrow's surgery. Know that we send our love.
Lisa & Matt Self
Cari,
My positive thoughts will be sent your way during and after your surgury. I hope it all goes smoothly and your recovery is easy! My Mom said to say Hi and she will be thinking of you too!! The whole Bellows clan will be wishing the best for you!
Glad to hear things are looking very good for Liam!
You have dealt with a lot this past year! Yet, when I think about the times when I have seen you I think of your smile and you laughing! Amazing!
good vibes good vibes good vibes
positive thoughts positive thoughts
all to you Cari!
Cynthia
I'm with ya Cari!! Anything you need...I'm here. Lots of positive thoughts will be headed your way tomorrow.
Hi Cari and Jim, Our prayers are with you from Him who Loves and Heals. I know with your attitude of heart the healing will be complete. Tomorrow there will be a big candle burning to remind me that Cari is a light in His life. Our best to you. Frannie and Vin Greco (Jarod's grandparents).
Carolyn -
Another round of HAPPY THOUGHTS from Pasadena. There's a fresh batch of PTO in your account compliments of total strangers that want to help.
Looking forward to "racing" with you in October.
RBW Fan Club President - Pasadena
Hi Cari,
Wishing you lot's of love rather than luck, we don't think luck will come into it! We are sure your operation will go well.
We have never met, but we met Lisa and Jarrod in Italy last year. Lisa has done a great job and she must be a great sister to have around!
You take good care of yourself.
Love Chris and Joanne, from Manchester, England. xxxx
Hi Carolyn,
I work with Tracey and have been following your progress through her. Your story is inspiring. My thoughts and prayers are with you.
Your fight has demanded tremendous courage so this quote seems fitting:
A hero is no braver than an ordinary person, but he or she is braver for 5 minutes longer. -Ralph Waldo Emerson
Amy
Hi Cari,
I'll be thinking of you tomorrow (as I do EVERY day).
Linda said Sunday might be a good day for me to bring you some flowers and roses from my garden.
See you then...
Richard
Hi Cari,
I have been following you blog since your sister, Lisa told me about it. You have truly inspired me through your courage, wit, honesty and the ability to write through this whole ordeal.
I wish you the best of luck tomorrow. I will be thinking positive thoughts for you until I hear all is well.
Hugs, Andrea
Carolyn,
My thoughts are with you!
"A strong woman knows she has strength enough for the journey, but a woman of strength knows it is in the journey where she will become strong. "
- author unknown
Take care!
Grace (coworker of Tracey)
Cari,
I hope everything goes great with your procedure. I'll be thinking about you tommorrow!
best wishes,
Mike "T's" friend
GOOD LUCK, Cari! Know that you have a huge support group keeping you in their thoughts! You have found a way to touch so many people in ways you can never imagine. You are truly inspirational!
From,
A coworker of Lisa's
I admire you for your strength and courage. I only wish I had half what you have. You're an inspiration to all of us. I will be thinking of you tomorrow and every other day!!
See you soon!
Danielle
Hi Cari,
Tomorrow's a big day. May all your spirits be buoyant like balloons and bubbles. Give them all your fear and anxiety and let it all float away! I'll be thinking of you -- sending happy, healing thoughts.
Be well!
Smiles,
Steph
(friend of Lisa's)
Hey there ceautiful,
Don't you just love that word!! I have not blogged in a while but have been keeping up and thinking
of you everyday. You know my best wishes are with you and your family tomorrow and everyday. I will give Liam lots of extra loving tomorrow and maybe get slimed a little bit.
Love ya,
Lorri
Hey superstar,
Just a quick note to remind you that we will be holding you all (but especially you) close in our thoughts tomorrow. One more item to check off the list.
Lots of love,
Clan McCafferty, Pacific Northwest Chapter
Just like the caterpillar emerges as a butterfly, Radioactive Boob Woman (RBW - our super-hero) tranfsorms to Belly Boob Woman (BBW)!
May the force be with you... ;)
Sophie
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Greets to the webmaster of this wonderful site! Keep up the good work. Thanks.
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